The National Bone Marrow Transplant Link presents: "Understanding & Coping with Chronic Graft versus Host Disease (cGvHD)"

A Free Telephone Conference & Podcast for Bone Marrow/Stem Cell Transplant Survivors, Caregivers, Families, and their Health Care Professionals

Listen to our telephone conference recorded Tuesday,
November 1, 2011

To download an mp3 version of this podcast, click here.

This podcast is available for free on iTunes.

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Telephone conference documents

• Chronic Graft-versus-Host Disease, Mary Flowers, MD
• Self-Management Options to Improve Symptoms, Function, and Well-Being, Sandra Mitchell, PhD, CRNP
• Living Post-Transplant and With cGvHD: A Patient's Point of View, Ellen Frank, PhD
• Dry Eyes Intervention

Speakers:

• Mary Flowers, MD
  Professor of Medicine, University of Washington,
  Director, Long Term Follow Up, Fred Hutchinson Cancer Research Center, Seattle, WA
• Sandra Mitchell, PhD, CRNP
  Research Scientist, Outcomes Research Branch;
  Applied Research Program Division of Cancer Control and Population Sciences, National Cancer Institute,
  Bethesda, MD
• Ellen Frank, PhD
  BMT Survivor Coping with cGvHD, Boston, MA

Topics:

• What is cGvHD? What are its signs and symptoms?
• How is cGvHD treated and managed?
  Principals of treatment and management of cGvHD
  When does cGvHD need systemic treatment and for how long?
  How long can you expect your transplant team to follow you?
• What do I need to know about Emerging Treatments?
  Importance of clinical trials and current research
  Are specialty consultation centers an option for me?
• How can I develop a personal plan to manage my chronic problems?
  Learn as much as you can.
  Develop a good treatment team locally (example: physical therapist, eye specialist, internist, etc.).
  Set realistic expectations.
• What can I do to cope better emotionally?

Q & A Opportunity

We are grateful to the following sponsors for their support: