Resources

Bone Marrow/Stem Cell Transplant Frequently Asked Questions
Helpful information for patients, caregivers and families
(Bilingual Spanish/English)

Resource Listing

The following list of resources may be helpful to BMT survivors, their caregivers, and families. They are not intended to be endorsements. While the internet may be a valuable tool, it may also contain misleading or inaccurate information. Remember, the best source of medical advice is your physician and other health care professionals. Additional information and resources may be found on the National Bone Marrow Transplant Link web site at www.nbmtlink.org.

Bone Marrow/Stem Cell Transplant Information and Support

Be The Match®
Patient Services 888-999-6743 or 612-362-3410
www.bethematch.org/patient
www.exploreBMT.org

National Bone Marrow Transplant Link (nbmtLINK)
800-LINK-BMT (800-546-5268) or 248-358-1886
www.nbmtlink.org

Blood & Marrow Transplant Information Network (BMT InfoNET)
888-597-7674 or 847-433-3313
www.bmtinfonet.org

BMTSupport.org
www.bmtsupport.org

The Bone Marrow Foundation
800-365-1336 or 212-838-3029
www.bonemarrow.org

American Society for Blood and Marrow Transplantation (ASBMT)
847-427-0224
www.asbmt.org

Center for International Blood & Marrow Transplant Research (CIBMTR)
414-805-0700
www.cibmtr.org

Health Resources and Services Administration
C.W. Bill Young Cell Transplantation Program
http://bloodcell.transplant.hrsa.gov

Bone Marrow Donor Information

Be the Match Registry
Operated by the National Marrow Donor Program
800-MARROW2 (800-627-7692)
www.bethematch.org

Asians for Miracle Marrow Matches (A3M)
888-A3M-HOPE (888-236-4673)
www.asianmarrow.org

Bone Marrow Donors Worldwide
www.bmdw.org

The Caitlin Raymond International Registry
800-726-2824 or 508-334-8969
www.crir.org

DKMS Americas
866-340-3567
www.dkmsamericas.org

Gift of Life Bone Marrow Foundation
800-9MARROW or 561-982-2900
www.giftoflife.org

Alternative, Complementary and Integrative Medicine

Complementary/Integrative Medicine Education Resources
MD Anderson Cancer Center
877-MDA-6789 (877-632-6789)
www.mdanderson.org/departments/CIMER/

Integrative Medicine – About Herbs, Botanicals and Other Products
Memorial Sloan-Kettering Cancer Center
212-639-2000
www.mskcc.org/mskcc/html/11570.cfm

MayoClinic.com – Drugs and Supplements
Mayo Clinic
507-284-2511
www.mayoclinic.com/health/drug-information/DrugHerbIndex

National Center for Complementary and Alternative Medicine
888-644-6226
www.nccam.nih.gov

National Institutes of Health Office of Dietary Supplements
301-435-2920
http://ods.od.nih.gov

National Cancer Institute Office of Cancer Complementary and Alternative Medicine
301-435-7980
www.cancer.gov/cam/index.html

Cancer, Multiservice

American Cancer Society
800-ACS-2345 (800-227-2345)
www.cancer.org

CancerCare, Inc.
800-813-HOPE (800-813-4673)
www.cancercare.org

National Cancer Institute
Cancer Information Service
800-4-CANCER
www.cancer.gov

Caregiver Support

Family Caregiver Alliance
800-445-8106 or 415-434-3388
www.caregiver.org

National Alliance for Caregiving
301-718-8444
www.caregiving.org

National Family Caregivers Association
800-896-3650 or 301-942-6430
www.thefamilycaregiver.org

Rosalynn Carter Institute for Caregiving
Georgia Southwestern State University
229-928-1234
www.rosalynncarter.org

Well Spouse Association
800-838-0879 or 732-577-8899
www.wellspouse.org

Young (Cancer) Spouses
www.youngcancerspouses.org

Children, Adolescents, Young Adults

Beyond the Cure
(National Children's Cancer Society)
800-5-FAMILY (800-532-6459)
www.beyondthecure.org

Cancer Survivors' Fund
281-437-7142
www.cancersurvivorsfund.org

American Childhood Cancer Organization (formerly Candlelighters)
800-366-2223 or 301-962-3520
www.acco.org

CureSearch for Children's Cancer
Children's Oncology Group
800-458-6223
www.curesearch.org
www.survivorshipguidelines.org

I'm Too Young for This! Cancer Foundation
877-735-4673
www.i2y.org

Planet Cancer
512-452-9010
www.planetcancer.org

Ronald McDonald House Charities
630-623-7048
www.rmhc.org

The SAMFund for Young Adult Survivors of Cancer
866-439-9365 or 617-938-3484
www.thesamfund.org

SuperSibs!
888-417-4704 or 847-462-4742
www.supersibs.org

Teens Living with Cancer
585-563-6221
www.teenslivingwithcancer.org

The Ulman Cancer Fund for Young Adults
888-393-3863 or 410-964-0202
www.ulmanfund.org

Clinical Trials

Cancer.gov (National Cancer Institute)
888-624-1937
www.cancer.gov/clinicaltrials

CenterWatch Clinical Trials Listing Service
www.centerwatch.com

Coalition of Cancer Cooperative Groups, Inc.
www.cancertrialshelp.org

EmergingMed
877-601-8601
www.emergingmed.com

National Institutes of Health
www.clinicaltrials.gov

Disease Related Information

American Sickle Cell Anemia Association
216-229-8600
www.ascaa.org

Aplastic Anemia & MDS International Foundation, Inc.
800-747-2820 or 301-279-7202
www.aamds.org

Fanconi Anemia Research Fund, Inc.
888-326-2664 or 541-687-4658
www.fanconi.org

American Brain Tumor Association
800-886-2282 or 773-577-8750
www.abta.org

National Brain Tumor Society
800-770-8287
www.braintumor.org

National Comprehensive Cancer Network
215-690-0300
www.nccn.com

Immune Deficiency Foundation
800-296-4433
www.primaryimmune.org

National Organization for Rare Disorders
800-999-6673 or 203-744-0100
www.rarediseases.org

The Leukemia & Lymphoma Society
800-955-4572 or 914-949-5213
www.lls.org

Leukemia Research Foundation
(Illinois residents and Chicago vicinity)
888-558-5385 or 847-424-0600
www.leukemia-research.org

Lymphoma Research Foundation
800-500-9976 or 212-349-2910
www.lymphoma.org

International Myeloma Foundation
800-452-2873 or 818-487-7455
www.myeloma.org

Multiple Myeloma Research Foundation
203-229-0464
www.themmrf.org

Fertility, Sexuality, and Intimacy

The American Association of Sex Educators, Counselors, and Therapists
202-449-1099
www.aasect.org

American Society for Reproductive Medicine
205-978-5000
www.asrm.org

Female Sexual Medicine Program
650-723-7243
http://womenshealth.stanford.edu/fsm/

Fertile Hope (LIVESTRONG)
855-220-7777
www.fertilehope.org

Genetics and IVF Institute
800-552-4363 or 703-698-7355
www.givf.com

The Oncofertility Consortium at Northwestern University
866-708-3378
http://myoncofertility.org

Resolve: The National Infertility Association
703-556-7172
www.resolve.org

Financial and Fundraising

Cancer Financial Assistance Coalition
www.cancerfac.org

The Max Foundation
888-462-9368 or 425-778-8660
www.themaxfoundation.org

National Association of Hospital Hospitality Houses
800-542-9730
www.nahhh.org

National Foundation for Transplants
800-489-3863 or 901-684-1697
www.transplants.org

HelpHOPELive (Formerly National Transplant Assistance Fund)
800-642-8399
www.HelpHOPELive.org

Patient Access Network Foundation
866-316-7263
www.panfoundation.org

Patient Advocate Foundation
800-532-5274
www.patientadvocate.org

Insurance and Prescriptions

Foundation for Health Coverage Education
800-234-1317
www.coverageforall.org

Medicare
800-MEDICARE (800-633-4227)
www.medicare.gov

Medicare Rights Center
800-333-4114
www.medicarerights.org

NeedyMeds, Inc.
www.needymeds.org

Partnership for Prescription Assistance
888-477-2669
www.pparx.org

Legal Rights and Workplace Issues

American Bar Association
800-285-2221
www.americanbar.org

Americans with Disabilities Act
800-514-0301
www.ada.gov

Cancer and Careers
646-929-8032
www.cancerandcareers.org

Cancer Legal Resource Center
866-843-2572 or 213-736-1455
www.cancerlegalresourcecenter.org

Equal Employment Opportunity Commission
800-669-4000
www.eeoc.gov

National Cancer Legal Services Network
www.NCLSN.org

Patient Advocate Foundation
800-532-5274
www.patientadvocate.org

Managing Side Effects

American Pain Society
847-375-4715
www.ampainsoc.org

Boston Foundation for Sight
781-726-7337
www.bostonsight.org

Cancer Symptoms (Oncology Nursing Society)
866-257-4667
www.cancersymptoms.org

National Bone Marrow Transplant Link
Coping with Chronic GVHD Telephone Education/Support Group and Webcasts
800-LINK-BMT (800-546-5268) or 248-358-1886
www.nbmtlink.org

National Lymphedema Network
800-541-3259 or 415-908-3681
www.lymphnet.org

National Sleep Foundation
703-243-1697
www.sleepfoundation.org

The Neuropathy Association
212-692-0662
www.neuropathy.org

Nutrition

American Institute for Cancer Research
800-843-8114 or 202-328-7744
www.aicr.org

Food and Nutrition Information Center
www.nutrition.gov

Survivorship

Association of Cancer Online Resources (ACOR)
212-226-5525
www.acor.org
BMT Talk: http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=bmt-talk
GvHD: http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=GVHD

R.A. Bloch Cancer Foundation, Inc.
800-433-0464 or 816-854-5050
www.blochcancer.org

Cancer.Net (American Society of Clinical Oncology)
888-651-3038 or 571-483-1780
www.cancer.net

Cancer Hope Network
800-552-4366 or 908-879-4039
www.cancerhopenetwork.org

Cancer Support Community (Formerly Gilda's Club and the Wellness Community)
888-793-9355
www.cancersupportcommunity.org

Cancervive
cancervivr@aol.com
www.cancervive.org

Journey Forward
707-636-5900
www.journeyforward.org

LIVESTRONG Lance Armstrong Foundation
855-220-7777
www.livestrong.org

National Cancer Survivors Day Foundation
615-794-3006
www.ncsd.org

National Coalition for Cancer Survivorship
877-622-7937 or 301-650-9127
www.canceradvocacy.org

Oncolink
Abramson Cancer Center of the University of Pennsylvania
www.oncolink.org

Vital Options International
818-508-5657
www.vitaloptions.org

Transportation

Air Care Alliance
888-260-9707
www.aircareall.org

Air Charity Network
877-621-7177
www.aircharitynetwork.org

Corporate Angel Network
866-328-1313 or 914-328-1313
www.corpangelnetwork.org

National Patient Travel Center
800-296-1217
www.patienttravel.org

Patient AirLift Services
888-818-1231
www.palservices.org

CD's / DVD's / Videos

Coping with Chronic GVHD in Adults and Meeting the Challenges of Chronic GVHD in Children & Adolescents, National Bone Marrow Transplant Link, 2009

Decisions. Support. Possibilities. Transplant as an Option When You are 50 and Older, Be The Match, 2011

Guided Visualization Working with the Healing Power of Your Immune System, Aquarius Health Care Media, 2003

The Healing Attitude: The Empowered Patient, Aquarius Health Care Media, 2007

Insights: Experiencing Transplant as a Young Adult, Be The Match, 2011

The New Normal: Life after Bone Marrow/Stem Cell Transplant, National Bone Marrow Transplant Link, 2001

Stress Relief Healing with Dr. Russ Greenfield, Aquarius Health Care Media, 2006

Super Sam versus the Marrow Monsters. A Guide to Bone Marrow Transplant for Children and their Families, Be The Match, 2011

Words of Experience. Stories of Hope. A Guide to Marrow and Cord Blood Transplant for Patients and Caregivers, Be The Match, 2011

Books and Magazines

100 Questions & Answers about Life after Cancer: A Survivor's Guide, by Page Tolbert, 2008

100 Questions & Answers about Cancer and Fertility, by Kutluk H. Oktay, 2008

After the Diagnosis: How to Look Out for Yourself or a Loved One, by Donna L. Pikula, DDS, 2006

American Cancer Society Complete Guide to Complementary and Alternative Cancer Therapies, 2nd edition, 2009

American Cancer Society Complete Guide to Nutrition for Cancer Survivors: Eating Well, Staying Well, 2010

The Anatomy of Hope: How People Prevail in the Face of Illness, by Jerome Groopman, 2005

Anatomy of an Illness as Perceived by the Patient: Reflections on Healing and Regeneration, by Norman Cousins, 2005

Anticancer: A New Way of Life, by David Servan-Schreiber, 2009

The Art of Conversation Through Serious Illness: Lessons for Caregivers, by Richard P. McQuellon, 2010

Bone Marrow and Blood Stem Cell Transplants: A Guide for Patients, by Susan K. Stewart, 2012

Breaking the Silence: Inspirational Stories of Black Cancer Survivors, by Karin L. Stanford, PhD, 2005

Cancer Caregiving A to Z: An At-Home Guide for Patients and Families, American Cancer Society, 2008

Cancer Dictionary, by Michael J. Sarg, 2007

Cancer Etiquette: What to Say, What to Do, When Someone You Know or Love Has Cancer, by Rosanne Kalick, 2005

Cancer Fitness: Exercise Programs for Patients and Survivors, by Lance Armstrong and Anna L. Schwartz, 2004

Cancer in Context: A Practical Guide to Supportive Care, by James Brennan, 2004

Cancer Survivor's Almanac: Charting your Journey, National Coalition for Cancer Survivorship, edited by Barbara Hoffman, 2004

The Cancer Survivor's Guide: the Essential Handbook to Life after Cancer, by Michael Feurerstein, PhD and Patricia Findley, 2006

Caregivers' Guide for Bone Marrow/Stem Cell Transplant: Practical Perspectives, National Bone Marrow Transplant Link, 2007

Childhood Cancer Survivors: a Practical Guide to Your Future, by Nancy Keene, 2007

Crazy Sexy Cancer Tips, by Kris Carr, 2007

Creative Visualization: Use the Power of Your Imagination to Create What You Want in Life, by Shakti Gawain, 2009

Chronic Graft Versus Host Disease: Interdisciplinary Management, by Georgia B. Vogelsang, MD and Steven Z. Pavletic, MD, 2009

Coping with Cancer Magazine, www.copingmag.com

Coping with Prednisone (and other cortisone-related medicines), by Eugenia Zukeman and Julie R. Inglefinger, MD, revised and updated 2007

CURE Magazine, www.curetoday.com

Diagnosis: Cancer, by Wendy Schlessel Harpham, 2003

Eating Well Through Cancer, by Holly Clegg & Gerald Miletello, MD, 2008

Everyone's Guide to Cancer Supportive Care: A Comprehensive Handbook for Patients and their Families, by Ernest Rosenbaum, MD and Isadora Rosenbaum, 2005

Everyone's Guide to Cancer Survivorship: A Road Map for Better Health, by Holly Gautier, RN and Ernest H. Rosenbaum, MD, 2007

Everything Changes: The Insider's Guide to Cancer in Your 20's and 30's, by Kairol Rosenthal, 2009

Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness, by Jon Kabat-Zinn, PhD, 2009

Handbook of Cancer Survivorship, by Michael Feurerstein, PhD, 2007

The Healing Power of Humor: Techniques for Getting Through Loss, Setbacks, Upsets, Disappointments, Difficulties, Trials, Tribulations, and All That Not-so-funny Stuff, by Allen Klein, 2003

How Can I Help? Everyday Ways to Help Those Close to You Live with Cancer, by Monique Doyle Spencer, 2008

Johns Hopkins Medicine Patients' Guide to Leukemia, by Candis Morrison, 2011

Johns Hopkins Medicine Patients' Guide to Lymphoma, by Aditya Bardia, 2011

Kitchen Table Wisdom: Stories That Heal, by Rachel Naomi Remen, MD, 2006

Living Now: A Guide to Life After Transplant, newsletter series, Be The Match, 2011

Livestrong Quarterly Magazine, www.livestrongmagazine.com

The Lonely Patient: How We Experience Illness, by Michael Stein MD, 2007

Mapping the Maze: A Personal Financial Guide to Blood Stem Cell Transplants, by Be The Match, 2011

Men Cancer Sex, by Anne Katz, 2010

Nutritional Issues in Cancer, edited by Valerie J. Kogut, MA, RD, LDN, 2005

One Bite at a Time Nourishing Recipes for Cancer Survivors and Their Friends, by Rebecca Katz with Mat Edelson, 2nd edition, 2008

Out of Nowhere, by Esther M.R. Hougham, 2011

A Patient's Guide to Cancer Symptom Management, by Carlton G. Brown, 2011

Picking Up the Pieces: Moving Forward after Surviving Cancer, by Sherri Magee and Kathy Scalzo, 2007

Resource Guide for Bone Marrow/Stem Cell Transplant: Including Bone Marrow, Peripheral Blood, and Cord Blood, National Bone Marrow Transplant Link, 2006 (Online only at www.nbmtlink.org)

Sexuality and Cancer: For the Woman Who Has Cancer and Her Partner, American Cancer Society, 2005

Stumbling Toward Heaven: Mike Hamel on Cancer, Crashes and Questions, by Mike Hamel, 2011

Survivorship Guide for Bone Marrow/Stem Cell Transplant: Coping with Late Effects, by Keren Stronach, National Bone Marrow Transplant Link, 2010

Understanding Cancer Therapies, by Helen S.L. Chan, 2007

Voices of Hope & Healing For Bone Marrow/Stem Cell Transplant; Offering Inspiration, Support & Hope to Patients, Survivors & Their Caregivers, National Bone Marrow Transplant Link, 2011

What Helped Get Me Through: Cancer Survivors Share Wisdom and Hope, edited by Julie K. Silver, MD, American Cancer Society, 2009

When Bad Things Happen to Good People, by Harold S. Kushner, 2004

Woman Cancer Sex, by Anne Katz, 2009

You Can Conquer Cancer: Prevention and Management, by Ian Grawler, 2005

You the Smart Patient: An Insider's Handbook for Getting the Best Treatment, by Michael F. Roizen, MD and Mehmet C. OZ, MD with the Joint Commission, 2006

Your Brain After Chemo: A Practical Guide to Lifting the Fog and Getting Back Your Focus, by Diana Dyer, 2010

Your Guide to the Transplant Process. From the Donor Search Through Recovery, Be The Match, 2011.

Your Introduction to Marrow and Cord Blood Transplant. Helping You Learn, Plan and Decide, Be The Match, 2011

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