Resources and Support - National Bone Marrow Transplant Link

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info@nbmtlink.org
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248-358-1886
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20411 W. 12 Mile Rd.
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Southfield, MI
48076

Resources and Support
Resources

The National Bone Marrow Transplant Link is dedicated to helping individuals and their families from diagnosis through survivorship. We work with hospitals, cancer centers, and other organizations to reinforce and complement medical care.

The nbmtLINK offers a number of unique resources to meet your needs:

Our publications are available online for you to read, download, or print out for free. If you would like hard copies, you may order any of the booklets for a small charge. Our webcasts contain helpful information on topics such as caregiving for a bone marrow transplant patient and chronic Graft Versus Host Disease in children and adults. Our Online Library consists of hundreds of journal articles, booklets and reference materials relating to bone marrow/stem cell transplant issues. And if you still have not found the information you need, please feel free to contact our staff with any questions.


	Resource Guide for Bone Marrow/Stem Cell Transplant Friends Helping Friends This booklet is available online only. This easy-to-read reference booklet offers a wide range of topics, providing an overview of the transplant process. Highlighted are financial and insurance concerns, physical and practical issues. More than 60,000 patients, families and health professionals have benefited from this remarkable booklet.

	Guide des resources pour la greffe de cellules souches L'entraide à son meilleur C'est au début de l'année 2005 que le programme de greffe de cellules souches (PGCS) du Centre universitaire de santé McGill (CUSM), établi à Montréal, au Québec, s'est associé au nbmtLINK afin de développer cette version française du « Resource Guide. » Le Guide des ressources pour la greffe de cellules souches constitue un premier pas vers l'obtention et la diffusion de renseignements adaptés et destinés aux patients de greffe.

	Survivorship Guide for Bone Marrow/Stem Cell Transplant, Coping with Late Effects Keren Stronach, MPH, a survivor of two bone marrow transplants, has written a reassuring, knowledgeable, and practical guidebook for transplant survivors living with late effects. It offers information on a number of post-transplant topics, such as Chronic Graft Versus Host Disease, Emotional Well-Being, Sexuality and Intimacy, Returning to Work, and Caring for Your Body. Throughout the publication, Stronach weaves in the experience of 61 other transplant survivors, providing advice and information on what to expect in the years following transplant.

	Caregivers' Guide for Bone Marrow/Stem Cell Transplant Practical Perspectives A spotlight now shines on the significant role of the BMT caregiver. This book offers practical suggestions for getting through the difficult days from people who have been there. More importantly, it lets you know that you are not alone, that it is worth the struggle and that your role is critically important and appreciated.

	nbmtLINK 2 GB USB Flashdrive This flash drive includes a new audio version of excerpts from the nbmtLINK's booklet, Voices of Hope and Healing, a collection of inspirational stories, poetry, and practical advice from bone marrow/stem cell transplant survivors, caregivers, and their family members from around the country. You will also find a downloadable copy of the entire Voices of Hope and Healing booklet from which the audio excerpts were taken. You may also be interested in some of the other documents on this flash drive that will better familiarize you with the resources, support, and programs offered by the nbmtLINK. There is also space to add your own files or documents to this flash drive.

	Bone Marrow/Stem Cell Transplant Frequently Asked Questions Helpful information for patients, caregivers and families This booklet is intended for patients, caregivers, and families as they prepare for and enter the world of bone marrow/stem cell transplant. It was written as a helpful resource to give patients and families tools, information, encouragement, and support during their transplant journey.

	Preguntas Frecuentes sobre el Trasplante de Médula Ósea/Células Madre Información útil para pacientes, cuidadores y familias Este folleto está dirigido a los pacientes, los cuidadores y las familias durante su preparación e ingreso en el mundo del trasplante de médula ósea/células madre. Se redactó como un recurso útil para ofrecer a los pacientes y sus familias herramientas, información, aliento y apoyo en su jornada hacia un trasplante.

	LINKING Curing & Caring from Diagnosis Through Survivorship nbmtLINK Brochure

	nbmtLINK Agency Brochure LINKING Curing & Caring (English version)

	nbmtLINK Agency Brochure LINKING Curing & Caring (en Espanol) The nbmtLINK is very grateful to City of Hope for providing the Spanish translation of this brochure.

	Voices of Hope & Healing for Bone Marrow/Stem Cell Transplant Offering Inspiration, Support & Hope To Patients, Survivors & their Caregivers We hope that this collection of inspirational stories, poems, and practical advice from bone marrow/stem cell transplant survivors, caregivers, and their families serves as a source of support and warming comfort.

	Voices of Hope & Healing is a collection of stories, poems, and original artwork from BMT survivors and their family members. We hope that this collection will serve as a collage of support, helping those undergoing transplant feel less isolated through a connection with individuals that have been through the transplant. To read a story, please visit www.nbmtlink.org/voices and click on a quilt patch. Or, to see where stories are located in the quilt, click on “Show All Stories” once you’ve entered the site. *This site uses Adobe Flash Player , which may be incompatible with certain computers.

	DVD: The New Normal Life After Bone Marrow/Stem Cell Transplant A remarkable 45-minute film for anyone whose life has been touched by bone marrow/stem cell transplant. The New Normal is an incredible story told through the voices of transplant survivors and their caregivers. Although no film can fully prepare an individual for what they will face during a bone marrow/stem cell transplant, The New Normal provides information, inspiration and hope. The video was made possible through a generous grant from Fujisawa Healthcare, Inc., however, it is now available in DVD format through a generous contribution from the General Motors Foundation.

	Be The Match Post-Transplant Care Guidelines As you navigate your care following an allogeneic or autologous transplant, the Be The Match Post-Transplant Care Guidelines can help. These easy-to-understand guidelines provide a summary of the recommended tests and evaluations for your 6-month, 12-month and annual (2+ year) appointments. Knowing what to expect can help you prepare for your appointment with your doctor.

	Gathering Stones One Woman's Personal Journey through Cancer This book is written by Martha Nielsen, Grateful Survivor. Martha is an nbmtLINK volunteer who writes please understand; this is not a book about how to conquer cancer. I make no attempt to give medical advice or provide information about miraculous treatments. I have written these words with the hope that someone else might benefit from methods I used to help myself cope and lessons I gleaned as I muddled my way through and fought my way back to health.

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