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1-800-LINK-BMT

(800-546-5268)
248-358-1886
Fax 248-358-1889
20411 W. 12 Mile Rd.
Suite 108
Southfield, MI
48076

Resources and Support
Resources

Resource Guide for Bone Marrow/Stem Cell Transplant

Resource Listing

Stem Cell Transplant Information and Support

BMT InfoNet
2900 Skokie Valley Road, Suite B
Highland Park, IL 60035
888-597-7674 or 847-433-3313
Email: help@bmtinfonet.org
www.bmtinfonet.org

The Bone Marrow Foundation
337 E. 88th Street, Suite 1B
New York, NY 10128
800-365-1336 or 212-838-3029
Email: thef@bonemarrow.org
www.bonemarrow.org

Center for International Blood and Marrow Transplant Research (CIBMTR)
Health Policy Institute
Medical College of Wisconsin
8701 Watertown Plank Road
P.O. Box 26509
Milwaukee, WI 53226
414-456-8325
E-mail: cibmtr@hpi.mcw.edu
www.cibmtr.org

National Bone Marrow Transplant Link
(nbmtLINK)
20411 W. 12 Mile Road, Suite 108
Southfield, MI 48076
800-LINK-BMT (800-546-5268) or
248-358-1886
Email: info@nbmtlink.org
www.nbmtlink.org

National Marrow Donor Program (NMDP)
3001 Broadway Street Northeast, Suite 500
Minneapolis, MN 55413-1753
800-MARROW-2 (800-627-7692)
888-999-6743 Office of Patient Advocacy
Email: questions@nmdp.org
www.marrow.org

Stem Cell Donor Information Including Bone Marrow, Peripheral Blood, and Cord Blood

American Indian/Alaska Native Initiative National Marrow Donor Program (NMDP)
3001 Broadway Street Northeast, Suite 500
Minneapolis, MN 55413-1753
800-627-7692
888-999-6743 Office of Patient Advocacy
Email: questions@nmdp.org
www.marrow.org

Asians for Miracle Marrow Matches
231 E. Third Street, Suite G107
Los Angeles, CA 90013
888-A3M-HOPE (888-236-4673)
Email: A3M@LTSC.org
www.asianmarrow.org

Caitlin Raymond International Registry
University of Massachusetts Memorial
Medical Center
55 Lake Avenue North
Worcester, MA 01655
800-726-2824 or 508-334-8969
Email: info@crir.org
www.crir.org

Cryobanks International
270 S. Northlake Boulevard, Suite 1012
Altamonte Springs, FL 32701
407-834-8333 or 800-869-8608
Email: clientservices@cryo-intl.com
www.cryo-intl.com

Gift of Life Bone Marrow Foundation
800 Yamato Rd., #101
Boca Raton , FL 33431

800-9MARROW or 561-982-2900
info@giftoflife.org
www.giftoflife.org

HLA Registry
A Division of Community Blood Services
800 Kinderkamack Road, Suite 300
Oradell, NJ 07649
800-336-3363 or 201-705-1799
Email: DanielleO@bcrbc.org
www.communitybloodservices.org

National Marrow Donor Program (NMDP)
3001 Broadway Street Northeast, Suite 500
Minneapolis, MN 55413-1753
800-627-7692
Email: questions@nmdp.org
www.marrow.org

New York Blood Center
310 E. 67th Street
New York, NY 10021
800-933-2566 or 212-570-3297
Email: webmaster@nybloodcenter.org
www.nybloodcenter.org

Siblings Donor Cord Blood Program Children’s Hospital & Research Center at Oakland
5700 Martin Luther King Jr. Way
Oakland, CA 94609
510-450-7605
Email: cordblood@chori.org
www.chori.org/siblingcordblood

TEPNEL Lifecodes
550 West Avenue
Stamford, CT 06902
800-915-3695 or 888-915-6527
Email: info@bonemarrowtest.com
www.bonemarrowtest.com

Cancer Information and Support

American Cancer Society
1599 Clifton Road, NE
Atlanta, GA 30329
800-ACS-2345 (800-227-2345) or
404-320-3333
Email: www.cancer.org/asp/contactUs/
www.cancer.org

CancerCare, Inc.
275 Seventh Avenue
New York, NY 10001
800-813-HOPE or 212-712-8080
Email: info@cancercare.org
www.cancercare.org

Cancer Information Service
National Cancer Institute (NCI)
6116 Executive Boulevard
Room 3036A
Bethesda, MD 20892-8322
800-4-CANCER or 800-422-6237
Email: cancergovstaff@mail.nih.gov
www.cancer.gov

Cancervive, Inc.
11636 Chayote Street
Los Angeles, CA 90049
800-426-2873 or 310-203-9232
Email: cancervive@aol.com
www.cancervive.org

Coping With Cancer Magazine
P.O. Box 682268
Franklin, TN 37068
615-790-2400
Email: copingmag@aol.com
www.copingmag.com

Cure Magazine
Cancer Information Group
3500 Maple Avenue, Suite 750
Dallas, TX 75246
800-210-2873 or 214-367-3500
Email: editor@curetoday.com
www.curetoday.com

Gilda’s Club Worldwide
322 Eighth Avenue, Suite 1402
New York, NY 10001
888-445-3248
Email: info@gildasclub.org
www.gildasclub.org

Lance Armstrong Foundation/Livestrong
P.O. Box 161150
Austin, TX 78716-1150
866-235-7205 or 512-236-8820
Email: livestrong@laf.org
www.livestrong.org

National Coalition for Cancer Survivorship
1010 Wayne Avenue, Suite 770
Silver Spring, MD 20910
877-NCCS-YES or 301-650-9127
Email: info@canceradvocacy.org
www.canceradvocacy.org

Vital Options International
TeleSupport Cancer Network
15821 Ventura Boulevard, Suite 645
Encino, CA 91436-2946
800-477-7666 or 818-788-5225
Email: info@vitaloptions.org
www.vitaloptions.org

The Wellness Community
919 18th Street, NW, Suite 54
Washington, DC 20006
888-793-9355 or 202-659-9709
Email: help@thewellnesscommunity.org
www.thewellnesscommunity.org

Women’s Cancer Resource Center
5741 Telegraph
Oakland, CA 94609
888-421-7900 or 510-420-7900
Email: wcrc@wcrc.org
www.wcrc.org

Caregiving Support

Family Caregivers Alliance
180 Montgomery Street, Suite 1100
San Francisco, CA 94104
415-434-3388 or 800-445-8106
Email: info@caregiver.org
www.caregiver.org

Friends’ Health Connection
P.O. Box 114
New Brunswick, NJ 08903
800-483-7436 or 732-418-1811
Email: info@friendshealthconnection.org
www.friendshealthconnection.org

Lotsa Helping Hands
365 Boston Post Road, Suite 157
Sudbury, MA 01776
978-505-0009
Email: info@lotsahelpinghands.com
www.lotsahelpinghands.com

National Alliance for Caregiving
4720 Montgomery Lane, 5th Floor
Bethesda, MD 20814
301-718-8444
Email: info@caregiving.org
www.caregiving.org

National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
800-896-3650
Email: info@thefamilycaregiver.org
www.thefamilycaregiver.org

National Organization for Empowering Caregivers
425 W. 23rd Street, Suite 9B
New York, NY 10011
212-807-1204
Email: info@nofec.org
www.nofec.org

National Respite Locator Service
800 Eastowne Drive, Suite 105
Chapel Hill, NC 27514
800-773-5433
www.respitelocator.org

Rosalynn Carter Institute for Caregiving
Georgia Southwestern State University
800 Wheatley Street
Americus, GA 31709
229-928-1234
Email: rci@canes.gsw.edu
www.rosalynncarter.org

Well Spouse Association
63 West Main Street, Suite H
Freehold, NJ 07728
800-838-0879
Email: info@wellspouse.org
www.wellspouse.org

Children’s Programs and Services

Candlelighters Childhood Cancer Foundation
P.O. Box 498
Kensington, MD 20895-0498
800-366-2223 or 301-962-3520
Email: info@candlelighters.org
www.candlelighters.org

CaringBridge
3440 Federal Drive, Suite 100
Eagan, MN 55122
651-452-7940
Email: www.caringbridge.com/support.htm
www.caringbridge.com

Children With Leukemia c/o
The Jennifer Lynn Stroud Foundation

14160 Dallas Parkway #300
Dallas, TX 75254
972-308-8383
Email: help@jlsfoundation.org
www.jlsfoundation.org

Children’s Leukemia Foundation of Michigan
(Michigan Residents)
29777 Telegraph Road, Suite 1651
Southfield, MI 48034
800-825-2536 or 248-353-8222
Email: info@leukemiamichigan.org
www.leukemiamichigan.org

Children’s Leukemia Research Association, Inc.
585 Stewart Avenue, Suite 18
Garden City, NY 11530
516-222-1944
Email: info@childrensleukemia.org
www.childrensleukemia.org

Children’s Organ Transplant Association (COTA)
2501 COTA Drive
Bloomington, IN 47403
800-366-2682
www.cota.org

Gilda’s Club Worldwide
Noogieland
322 Eighth Avenue, Suite 1402
New York, NY 10001
888-445-9248
Email: info@gildasclub.org
www.gildasclub.org

Kids Cancer Network
P.O. Box 4545
Santa Barbara, CA 93140
Email: info@kidscancernetwork.org
www.kidscancernetwork.org

National Childhood Cancer Foundation
440 E. Huntington Drive, Suite 300
P.O. Box 60012
Arcadia, CA 91066-6012
800-458-6223 or 626-447-1674
Email: info@curesearch.org
www.nccf.org

National Children’s Cancer Society
1015 Locust, Suite 600
St. Louis, MO 63101
800-5-FAMILY or 314-241-1600
Email: pfs@children-cancer.com
nationalchildrenscancersociety.com

Starbright Foundation
1850 Sawtelle Boulevard, Suite 450
Los Angeles, CA 90025
800-315-2580 or 310-479-1212
Email: info@starbright.org
www.starbright.org

SuperSibs!
4300 Lincoln Avenue, Suite I
Rolling Meadows, IL 60008
Toll Free: 866-444-SIBS(7427)
Illinois: 847-705-SIBS
Email: info@supersibs.org
www.supersibs.org

Fertility

American Association of Tissue Banks
1320 Old Chain Bridge Road, Suite 450
McLean, VA 22101
703-827-9582
Email: aatb@aatb.org
www.aatb.org

American Society for Reproductive Medicine
1209 Montgomery Highway
Birmingham, AL 35216
205-978-5000
Email: asrm@asrm.org
www.asrm.org

Fertile Hope
P.O. Box 624
42 W. 24th Street
New York, NY 10014
888-994-4673
Email: www.fertilehope.org/contact/info.cfm
www.fertilehope.org

Genetics and IVF Institute
3020 Javier Road
Fairfax, VA 22031
800-552-4363 or 703-698-7355
Email: givf@givf.com
www.givf.com

Resolve: The National Infertility Association
7910 Woodmont Avenue, Suite 1350
Bethesda, MD 20814
888-623-0744 or 301-652-8585
Email: info@resolve.org
www.resolve.org

Financial Assistance, Fundraising & Insurance

America’s Health Insurance Plans
601 Pennsylvania Avenue, NW
Washington, DC 20004
202-778-3200
Email: ahip@ahip.org
www.ahip.org

Cancer Legal Resource Center
Loyola Law School
919 S. Albany Street
Los Angeles, CA 90019-0015
213-736-1455 or 866-843-2572
Email: Barbara.schwerin@lls.edu

Children’s Organ Transplant Association (COTA)
2501 COTA Drive
Bloomington, IN 47403
800-366-2682
Email: michelle@cota.org
www.cota.org

Medicare Rights Center
1460 Broadway, 17th Floor
New York, NY 10036
212-869-3850
Email: info@medicarerights.org
www.medicarerights.org

My Friends Care Bone Marrow Transplant Fund
(Michigan Residents)
148 S. Main Street, Suite 101
Mt. Clemens, MI 48043
586-783-7390
Email: mfc@mich.com
www.myfriendscare.org

National Association of Hospital Hospitality Houses
P.O. Box 18087
Asheville, NC 28814-0087
800-542-9730 or 828-253-1188
Email: helpinghomes@nahhh.org
www.nahhh.org

National Foundation for Transplants
1102 Brookfield, Suite 200
Memphis, TN 38119
800-489-3863 or 901-684-1697
Email: info@transplants.org
www.transplants.org

National Marrow Donor Program
Office of Patient Advocacy
3001 Broadway NE, Suite 500
Minneapolis, MN 55413
888-999-6743
Email: patientinfo@nmdp.org
www.marrow.org

National Transplant Assistance Fund
3475 West Chester Pike, Suite 230
Newtown Square, PA 19073
800-642-8399 or 610-353-9684
Email: NYAF@transplantfund.org
www.transplantfund.org

Nielson Organ Transplant Foundation
(Northeast Florida Residents)
580 W. 8th Street, Suite 8000
Jacksonville, FL 32209
904-244-9823
Email: Nielsen@notf.org
www.notf.org

Patient Advocate Foundation
753 Thimble Shoals Boulevard, Suite 200
Newport News, VA 23606
800-532-5274 or 757-873-6668
Email: help@patientadvocate.org
www.patientadvocate.org

Pharmaceutical Research and Manufacturers of America
Prescription Drug Patient
Assistance Program
1100 Fifteenth Street, NW
Washington D.C. 20005
888-477-2669 or 202-835-3400
www.pparx.org

Disease-Related Information

Anemia

Aplastic Anemia & Myelodysplatic Syndrome (MDS) International Foundation, Inc.
P.O. Box 613
Annapolis, MD 21404-0613
800-747-2820 or 410-867-0242
Email: help@aamds.org
www.aplastic.org

Fanconi Anemia Research Fund, Inc.
1801 Willamette Street, Suite 200
Eugene, OR 97401
800-828-4891 or 541-687-4658
Email: info@fanconi.org
www.fanconi.org

Brain Tumor

American Brain Tumor Association
2720 River Road, Suite 146
Des Plaines, IL 60018
800-886-2282 or 847-827-9910
Email: info@abta.org
www.abta.org

National Brain Tumor Foundation
22 Battery Street
San Francisco, CA 94111
800-394-CURE or 510-839-9777
Email: nbtf@braintumor.org
www.braintumor.org

Breast Cancer

Adelphi New York Statewide Breast Cancer Hotline and Support Program
Adelphi University School of Social Work
Garden City, NY 11530
800-877-8077 or 516-877-4444
Email: breastcancerhotline@adelphi.edu
www.adelphi.edu/nysbreastcancer

The Susan G. Komen Breast Cancer Foundation
5005 LBJ Freeway, Suite 250
Dallas, TX 75244
800-462-9273 or 972-855-1600
Email: info@komen.org
www.komen.org

Y-Me National Breast Cancer Organization
212 W. Van Buren, Suite 500
Chicago, IL 60607
800-221-2141 (English) or
800-986-9505 (Spanish)
Email: help@y-me.org
www.y-me.org

Immune Deficiency Disorders

Immune Deficiency Foundation
40 W. Chesapeake Avenue, Suite 308
Towson, MD 21204
800-296-4433
Email: idf@primaryimmune.org
www.primaryimmune.org

Leukemia & Lymphoma

The Leukemia & Lymphoma Society
1311 Mamaroneck Avenue
White Plains, NY 10605
800-955-4572 or 914-949-5213
Email: infocenter@lls.org
www.lls.org

Leukemia Research Foundation
(Illinois Residents or those within
a 100-mile Radius of Chicago)
2700 Patriot Boulevard, Suite 100
Glenview, IL 60026
888-558-5385 or 847-424-0600
Email: info@lrfmail.org
www.leukemia-research.org

Lymphoma Research Foundation
8800 Venice Boulevard, Suite 207
Los Angeles, CA 90034
800-500-9976 or 310-204-7040
Or
111 Broadway, 19th Floor
New York, NY 10006
800-235-6848 or 212-349-2910
Email: LRF@lymphoma.org
www.lymphoma.org

Multiple Myeloma

International Myeloma Foundation
12650 Riverside Drive, Suite 206
North Hollywood, CA 91607-3421
800-452-2873
Email: TheIMF@myeloma.org
www.myeloma.org

Multiple Myeloma Research Foundation
51 Locust Avenue, Suite 204
New Canaan, CT 06840
203-972-1250
Email: info@themmrf.org
www.multiplemyeloma.org

Transportation

Air Care Alliance
1515 East 71st Street, Suite 312
Tulsa, OK 74136
888-260-9707 or 918-745-0384
Email: mail@aircareall.org
www.aircareall.org

Angel Flight America, Inc.
P.O. Box 17467
Memphis, TN 38187-0467
877-858-7788 or 901-332-4034
800-446-1231 (to request free flights)
www.angelflightamerica.org

Corporate Angel Network
Westchester County Airport
One Loop Road
White Plains, NY 10604-1215
866-328-1313 or 914-328-1313
Email: info@corpangelnetwork.org
www.corpangelnetwork.org

National Patient Travel Center
c/o Mercy Medical Airlift
4620 Haygood Road, Suite 1
Virginia Beach, VA 23455
888-675-1405 or 757-318-9175
Email: mercymedical@erols.com
www.patienttravel.org

Information on the Internet
The Internet is a valuable tool for cancer or medical research. It offers a wealth of information, some helpful, some misleading.
Rely on credible sources for information, such as hospitals or medical associations. Proceed with caution when searching on the Internet. Evaluate material by asking:
• What is the source of this information?
• Is it fact or opinion?
• Is it based on someone’s experience?
• How current is this information?
• Is this site set up to promote a product?

When evaluating Internet sites, check the address (URL). The final segment of the address offers a general idea of who is
sponsoring the Web site. Examples include:

.edu …site sponsored by an educational institution
.gov …site sponsored by a government agency
.org …site sponsored by a nonprofit organization
.com …site sponsored by a commercial company

Alternative and Complementary Medicine
National Center for Complementary and Alternative Medicine
www.nccam.nih.gov

National Institute of Health Office of Dietary Supplements
dietary-supplements.info.nih.gov

Office of Cancer Complementary and Alternative Medicine
cancer.gov/cam/index.html

Caregiving
Family Voices
www.familyvoices.org

Strength for Caring
www.strengthforcaring.com

Today’s Caregiver Magazine
www.caregiver.com

Children
2bMe
www.2bme.org

Cancer Source Kids
www.cancersourcekids.com

Group Loop-Online Support for Teens with Cancer
www.grouploop.org

Kid Support, Inc.
www.kid-support.org

Kids Konnected
www.kidskonnected.org

Clinical Trial Information
Center Watch Clinical Trials Listing Service
www.centerwatch.com

Coalition of National Cancer Cooperative Groups, Inc.
www.cancertrialshelp.org

National Cancer Institute
www.cancer.gov/clinical_trials/

National Institutes of Health
www.clinicaltrials.gov

Coping
Association of Cancer Online Resources Listserv
listserv.acor.org

BMT Support Online
www.bmtsupport.org

Cancer Hope Network
www.cancerhopenetwork.org

Planet Cancer
www.planetcancer.org

Foreign Language
ACS: Informacion de referencia sobre el cancer
www.cancer.org/docroot/esp/esp_0.asp

CancerCare-Espanol
www.cancercare.org/EnEspanol/EnEspanolmain.cfm

Cancer.gov-Algunos documentos especificos estan en espanol
www.cancer.gov/espanol

Espanol-healthfinder
healthfinder.gov/espanol

Institutos Nacionales de la Salud
salud.nih.gov

General Cancer Information
ACOR-Association of Cancer Online Resources
www.acor.org

National Cancer Institute
www.cancer.gov

CancerSource.com
www.cancersource.com

NOAH New York Online Access to Health: Cancer
www.noah-health.org/en/health

OncoLink
www.oncolink.com

People Living With Cancer
www.plwc.org

Specific Cancers
Amyloidosis Support Network
www.amyloidosis.org

International Waldenstrom’s Macroglobulinemia Foundation
www.iwmf.com

National Ovarian Cancer Coalition
www.ovarian.org

Patients Against Lymphoma
www.lymphomation.org

Women’s Cancer Network
www.wcn.org

Statistics:
Center for International Blood and Marrow Transplantation Research

Survivorship
Beyond the Cure
www.beyondthecure.org

Cancer and Careers
www.cancerandcareers.org

National Coalition for Cancer Survivorship
www.canceradvocacy.org

Symptom Management
CancerSymptoms.org
www.cancersymptoms.org

Look Good…Feel Better
www.lookgoodfeelbetter.org

Look Good…Feel Better for Men
www.lookgoodfeelbetterformen.org

National Lymphedema Network
www.lymphnet.org

Treatment
ChemoCare
www.chemocare.com

Lab Tests Online
www.labtestsonline.org

Radiology Info
www.radiologyinfo.org
www.cibmtr.org

Please contact the National Bone Marrow Transplant Link to report any new resources that may be helpful to others. The nbmtLINK is not responsible for the accuracy of any content
in this listing.

Back to Resource Guide Main page


Table of Contents

History

Introduction

Understanding the Process

Preparations for the Transplant

The Transplant

Pediatric Transplants

Emotional Considerations

The Role of Caregiver

Selecting a Caregiver

Costs

Insurance

Financial Aid

Conclusion

Glossary

Resource Listing

Books

Friends

 

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