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Survivorship Guide for Bone Marrow/Stem Cell Transplant
Coping with Late Effects

Acknowledgements

The National Bone Marrow Transplant Link (nbmtLINK) is very grateful to author Keren Stronach, who agreed to revise this booklet, and who, like many survivors, realizes the importance of finding the “new normal” while continuing to cope with the late effects of transplant. We would also like to acknowledge the transplant patients, survivors, and caregivers who generously shared their experiences and practical recommendations. The courage and dedication of all of these individuals inspire us every day!

The nbmtLINK would like to thank the reviewers, nbmtLINK staff, and volunteers who made this third edition of the Survivorship Guide possible:

Advisors/Reviewers:

Muneer H. Abidi, MD
Barbara Ann Karmanos Cancer Institute

Kari Bailey, MBC
National Marrow Donor Program

Michelle Bishop, PhD
University of Florida

Michelle Burda, MLS
Health Sciences Library System, University of Pittsburgh

Richard Dickens, LCSW-R
CancerCare

Jill Dowdy, MLIS
Mayo Clinic Cancer Center

Theresa Gambaro, MHS, PA-C
BMT Survivor and Experienced Hematology-Oncology Physician Assistant

Natalie Ledesma, MS, RD, CSO
UCSF Helen Diller Family Comprehensive Cancer Center

Stephanie Lee, MD, MPH
Fred Hutchinson Cancer Research Center

Navneet S. Majhail, MD, MS
University of Minnesota and Center for International Blood and Marrow Transplant Research

Sandra A. Mitchell, PhD, CRNP, AOCN,
National Institutes of Health Clinical Center

Carina K. Moravec, ARNP, MA
Fred Hutchinson Cancer Research Center

Katharine H. Parker, Esq.
Proskauer Rose LLP on behalf of the Cancer Advocacy Project, City Bar Justice Center

J. Douglas Rizzo, MD, MS
Center for International Blood and Marrow Transplant Research

Judith A. Shell, PhD, LMFT, RN
Osceola Cancer Center

Beverly Ventura, MA
Center for International Blood and Marrow Transplant Research

Ruti Volk, MSI, AHIP
University of Michigan Comprehensive Cancer Center

nbmtLINK Staff:

Cindy Goldman, MEd
Myra Jacobs, MA
Jean Jones
Denise Lillvis, MGA
Tiffany Rowe, MBA

nbmtLINK Volunteers:

Peg McIvor, Chris McClellan, Lori Strager, Patricia Earl

We gratefully acknowledge the financial support for the production of this updated Survivorship Guide from the following:

Corporate & Foundation Sponsors

Amgen*
Amgen

DeRoy Testamentary Foundation

Frank M. Ewing Foundation

The J.P. McCarthy Foundation

National Marrow Donor Program

William G. & Myrtle E. Hess Charitable Trust

LINK Partner Sponsors

American Society for Blood and Marrow Transplantation
American Society for Blood and Marrow Transplantation

Barbara Ann Karmanos Cancer Institute
Barbara Ann Karmanos Cancer Institute

The Blood and Marrow Program at Northside Hospital
The Blood and Marrow Program at Northside Hospital

Children's Hospital of Michigan
Children's Hospital of Michigan

Dana-Farber/Brigham and Women's Cancer Center
Dana-Farber/Brigham and Women's Cancer Center

Duke Medicine Adult Bone Marrow and
Stem Cell Transplant Program
Duke Medicine

Henry Ford Transplant Institute
Henry Ford Transplant Institute

Loyola University Medical Center
Loyola University Medical Center

Memorial Sloan-Kettering Cancer Center
Memorial Sloan-Kettering Cancer Center

Oregon Health & Science University
Oregon Health & Science University

Seattle Cancer Care Alliance
Seattle Cancer Care Alliance

University of Michigan Comprehensive Cancer Center
University of Michigan Comprehensive Cancer Center

University of Minnesota Medical Center & University of Minnesota Amplatz Children’s Hospital
University of Minnesota Medical Center & University of Minnesota Amplatz Children’s Hospital

Vanderbilt-Ingram Cancer Center
Vanderbilt-Ingram Cancer Center

Supporting Book Sponsors

Bone Marrow Transplant Program Virginia Commonwealth University Massey Cancer Center
Bone Marrow Transplant Program Virginia Commonwealth University Massey Cancer Center

Center for International Blood and Marrow Transplant Research (CIBMTR)
Center for International Blood and Marrow Transplant Research (CIBMTR)

Collaborating Book Sponsors

Blood & Marrow Transplant Program,
University Medical Center & Arizona Cancer Center

Blue Care Network of Michigan

Blue Cross Blue Shield of Michigan

Children’s Leukemia Foundation of Michigan

The Leukemia & Lymphoma Society

Temple University Health System

University of Pittsburgh Medical Center

*This activity is supported by an educational donation provided by Amgen

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