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Survivorship Guide for Bone Marrow/Stem Cell Transplant
Muscles and Nerves
GVHD can also affect your neuromuscular structures. This causes nerve pain, muscle weakness, and cramping. Muscle cramping can also be caused by some of the medications used to treat GVHD. However, for reasons that are not fully understood, muscle cramping can persist years after GVHD has resolved and can also occur in individuals who have never experienced GVHD.
Muscle cramping post transplant usually does not resolve with typical muscle relaxants and pain medications. Tonic water, which contains quinine, can sometimes provide relief as can certain prescription drugs that can be used alone or in combination with quinine. Talk to your doctor about possible treatments. Specific guidelines for treatment can also be obtained from larger transplant centers with departments dedicated to long-term care post transplant.
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