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Resources and Support

Survivorship Guide for Bone Marrow/Stem Cell Transplant
Coping with Late Effects


  1. Andrykowski MA, Bishop MM, Hahn EA, et al. Long-term health-related quality of life, growth, and spiritual well-being after hematopoietic stem-cell transplantation. J Clin Oncol. 2005;23(3):599-608.
  2. Pidala J, Anasetti C, Jim H. Quality of life after allogeneic hematopoietic cell transplantation. Blood. 2009;114(1):7-19.
  3. Syrjala KL, Langer SL, Abrams JR, Storer BE, Martin PJ. Late effects of hematopoietic cell transplantation among 10-year adult survivors compared with case-matched controls. J Clin Oncol. 2005;23(27):6596-6606.
  4. Kiss TL, Abdolell M, Jamal N, Minden MD, Lipton JH, Messner HA. Long-term medical outcomes and quality-of-life assessment of patients with chronic myeloid leukemia followed at least 10 years after allogeneic bone marrow transplantation. J Clin Oncol. 2002;20(9):2334-2343.
  5. Chiodi S, Spinelli S, Ravera G, et al. Quality of life in 244 recipients of allogeneic bone marrow transplantation. Br J Haematol. 2000;110(3):614-619.
  6. Mosher CE, Redd WH, Rini CM, Burkhalter JE, DuHamel KN. Physical, psychological, and social sequelae following hematopoietic stem cell transplantation: A review of the literature. Psycho-oncology. 2009;18(2):113-127.
  7. The Cleveland Clinic. Treatment options for depression. Available at: http://my.clevelandclinic.org/disorders/Depression/
    hic_Treatment_Options_for_ Depression.aspx
    . Updated 6/1/2009.
  8. Gurevich M, Devins GM, Rodin GM. Stress response syndromes and cancer: Conceptual and assessment issues. Psychosomatics. 2002;43(4):259-281.
  9. Seidler GH, Wagner FE. Comparing the efficacy of EMDR and trauma-focused cognitive-behavioral therapy in the treatment of PTSD: A meta-analytic study. Psychol Med. 2006;36(11):1515-1522.
  10. Classen C, Butler LD, Koopman C, et al. Supportive-expressive group therapy and distress in patients with metastatic breast cancer. Arch Gen Psychiatry. 2001;58(5):494-501.
  11. Stauss JL, Marx CE, Calhoun PS. Guided imagery as a therapeutic tool in Post- Traumatic Stress Disorder. In: Shironami J, Keane TM, LeDoux JE, eds. Post- Traumatic Stress Disorder. Durham, North Carolina: Humana Press; 2009:1-12.
  12. Bennet HJ. Humor in medicine. South Med Journal. 2003;96(12):1257-61.
  13. Monti M, Rosti G, De Giorgi U, et al. Sexual functions after high-dose chemotherapy in survivors of germ cell tumors. Bone Marrow Transplant. 2003;32(9):933-939.
  14. Syrjala KL, Kurland BF, Abrams JR, Sanders JE, Heiman JR. Sexual function changes during the 5 years after high-dose treatment and hematopoietic cell transplantation for malignancy, with case-matched controls at 5 years. Blood. 2008;111(3):989-996.
  15. Carter A, Robison LL, Francisco L, et al. Prevalence of conception and pregnancy outcomes after hematopoietic cell transplantation: Report from the bone marrow transplant survivor study. Bone Marrow Transplant 2006;37:1023–1029 [PubMed]. 2006;37:1023–1029.
  16. LIVESTRONG Lance Armstrong Foundation in collaboration with Barbara Ullman Schwerin. Employment discrimination. Available at: http://www.livestrong.org/site/c.khLXK1PxHmF/
    . Accessed 12/1/09.
  17. American Institute for Cancer Research. Food, nutrition and the prevention of cancer: A global perspective. Recommendations. Available at: http://www.dietandcancerreport.org/
    . Accessed 2008.
  18. Kushi LH, Byers T, Doyle C, et al. American Cancer Society guidelines on nutrition and physical activity for cancer prevention: Reducing the risk of cancer with healthy food choices and physical activity. CA Cancer J Clin. 2006;56(5):254-81; quiz 313-4.
  19. Canadian Cancer Society. Prevention nutrition and fitness. Available at: http://www.cancer.ca/
    . Updated 1/7/2009.
  20. Ledesma N. Nutrition for symptom management and control. In: Rosenbaum EH, Rosenbaum I, eds. Everyone’s Guide to Cancer Supportive Care: A Comprehensive Handbook for Patients and their Families. Canada: Andrews McMeel Publishing; 2005.
  21. American Heart Association. Fish and omega-3 fatty acids: AHA recommendation. Available at:
    . Updated 2010.
  22. BMT Info Net. Graft Versus Host Disease. Blood and Marrow Transplant Newsletter. Dec 2000;Issue #52, Vol 11, No. 4. Available at: http://www.bmtinfonet.org/newsletters/
  23. American Cancer Society. Living smart: The American Cancer Society’s guide to eating healthy and being active. Available at: http://www.cancer.org/downloads/PED/
    . Updated 2006.
  24. Washburn S. Vitamin D: Current news about an old vitamin for cancer survivors, Fred Hutchinson Research Cancer Center. Available at: http://www.fhcrc.org/patient/support/survivorship/
    . Updated 2009.
  25. Manuel F, Rosenbaum EH, Lalanne J, et al. Rehabilitation and fitness exercises. In: Rosenbaum EH, Rosenbaum I, eds. Everyone’s Guide to Cancer Supportive Care: A Comprehensive Handbook for Patients and their Families. Canada: Andrews McMeel Publishing; 2005:337.
  26. Centers for Disease Control and Prevention. Physical activity and health. Available at: http://www.cdc.gov/physicalactivity/everyone/
    . Updated 12/3/2008.
  27. Taylor RB, Nazario B. Weight-bearing exercise: 8 workouts for strong bones. Available at: http://www.webmd.com/osteoporosis/living-with-osteoporosis-7/exerciseweight- bearing. Updated 6/06/2008.
  28. Dugdale DC, Mason JR, Pines T, Zieve D. Graft-versus-host disease. Available at: http://www.nlm.nih.gov/MEDLINEPLUS/ency/
    . Updated 7/11/2008.
  29. Socie G. Chronic GVHD and health status in long-term survivors. Blood. October 15 2006;108(8):2503-2504.
  30. BMT CTN Data Coordinating Center. Definitions of chronic GVHD, blood and marrow transplant clinical trials network. Available at: https://web.emmes.com/study/bmt2/
    . Updated 2009.
  31. National Marrow Donor Program. Long-term survival guidelines: Recommended post-transplant care part II: Screening for GVHD. Available at: http://www.marrow.org/PHYSICIAN/
    . Updated 2008.
  32. Mayo Clinic. Dry eyes. Available at: http://www.mayoclinic.com/health/dryeyes/ DS00463. Updated 6/14/2008.
  33. Ogawa Y, Okamoto S, Mori T, et al. Autologous serum eye drops for the treatment of severe dry eye in patients with chronic graft-versus-host disease. Bone Marrow Transplant. 2003;31(7):579-583.
  34. Boston Foundation for Sight. Restoring sight – reclaiming lives. Available at: http://www.bostonsight.org/. Updated 12/15/2009.
  35. Skin Cancer Foundation. UV information. Available at: http://www.skincancer.org/
    . Updated 2009.
  36. Stonehouse-Lee SN, Vachani C. Graft Versus Host Disease: A learning module for nurses. Available at: http://www.oncolink.org/resources/
    . Updated 9/16/2007.
  37. Rizzo JD, Wingard JR, Tichelli A, et al. Recommended screening and preventive practices for long-term survivors after hematopoietic cell transplantation: Joint recommendations of the European Group for Blood and Marrow Transplantation, Center for International Blood and Marrow Transplant Research, and the American Society for Blood and Marrow Transplantation (EBMT/CIBMTR/ASBMT). Bone Marrow Transplant. 2006;37(3):249-261.
  38. American Dental Association. Cleaning your teeth and gums (oral hygiene). Available at: http://www.ada.org/public/topics/cleaning.asp. Updated 3/14/2005.
  39. Quirynen M, Avontroodt P, Soers C, Zhao H, Pauwels M, van Steenberghe D. Impact of tongue cleansers on microbial load and taste. J Clin Periodontol. 2004;31(7):506-510.
  40. Outhouse TL, Fedorowicz Z, Keenan JV, Al-Alawi R. A Cochrane systematic review finds tongue scrapers have short-term efficacy in controlling halitosis. Gen Dent. 2006;54(5):352-9; 360, 367-8; quiz 360.
  41. Blom M, Lundeberg T. Long-term follow-up of patients treated with acupuncture for xerostomia and the influence of additional treatment. Oral Dis. 2000;6(1):15-24.

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