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1-800-LINK-BMT

(800-546-5268)
248-358-1886
Fax 248-358-1889
20411 W. 12 Mile Rd.
Suite 108
Southfield, MI
48076
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Updated July 5, 2012


Stem Cell Transplant Information and Support

ExploreBMT™
www.explorebmt.org
ExploreBMT™ represents the combined effort of many reputable, patient-focused organizations committed to helping patients who need access to transplant-related resources.

BMT InfoNet
www.bmtinfonet.org
Since 1990, BMT InfoNet has provided quality information and emotional support to more than 100,000 transplant patients, survivors and their loved ones.

Be The Match®/National Marrow Donor Program
www.BeTheMatch.org
Be the Match helps patients with leukemia, lymphoma and other diseases who need a marrow or umbilical cord blood transplant. Be The Match is operated by the National Marrow Donor Program, a nonprofit that matches patients with donors, educates health care professionals and conducts research so more lives can be saved. People can join the Be The Match Registry® – the largest listing of potential marrow donors and donated cord blood units – contribute financially and volunteer. Be The Match also provides support and resources for patients and their families before, during and after transplant.

Center for International Blood and Marrow Transplant Research (CIBMTR)
www.cibmtr.org
The Center for International Blood and Marrow Transplant Research (CIBMTR) was created to collaborate with the worldwide scientific community, to advance the fields of hematopoietic cell transplantation (HCT) and cellular therapy research.  The organization facilitates important clinical research to increase survival and enrich the quality of life for thousands of HCT patients. 

National Bone Marrow Transplant Link
(nbmtLINK)
www.nbmtlink.org
The mission of the nbmtLink is to help patients, as well as their caregivers, families and the health care community, meet the many challenges of bone marrow/stem cell transplant by providing vital information and support services.

National Marrow Donor Program
(NMDP)
www.marrow.org
The National Marrow Donor Program (NMDP) helps people who need a life-saving marrow or blood cell transplant. We connect patients, doctors, donors and researchers to resources they need to help more people live longer, healthier lives. The NMDP’s marrow and cord blood registry — now called the Be The Match Registry — has grown to more than 7 million donors and nearly 90,000 cord blood units, the largest and most racially and ethnically diverse registry of its kind in the world.

Health Resources and Services Administration
bloodcell.transplant.hrsa.gov
The C.W. Bill Young Cell Transplantation Program provides support to patients who need a potentially life-saving bone marrow transplant or cord blood transplant. For some patients who have leukemia, lymphoma, sickle cell anemia or other inherited metabolic or immune system disorders, a marrow or cord blood transplant may be their best chance to live longer, healthier lives.


Stem Cell Donor Information Including Bone Marrow Peripheral Blood, and Cord Blood

American Bone Marrow Donor Registry
www.abmdr.org
The American Registry is committed to keeping its donor files accessible to any medically viable candidate for a marrow transplant who is being treated at an accredited bone marrow transplant center meeting Federal and World Marrow Donor Association standards. The American Registry is committed to maintaining an ethnically diverse donor panel.

Asians for Miracle Marrow Matches
www.asianmarrow.org
Asians for Miracle Marrow Matches is committed to the improvement of the health and welfare of all people by providing education, assistance, and facilitating prompt access to potential marrow/stem cell donors. We are dedicated to offering hope to the thousands suffering from diseases, which are treatable by stem cell transplant.

Be The Match®
www.BeTheMatch.org
Be The Match offers you the unique opportunity to help a patient in need by donating bone marrow or umbilical cord blood. Thousands of patients with leukemia and other life-threatening diseases depend on the Be The Match Registry to find a match. We all have the power to help, the power to change a life.

Caitlin Raymond International Registry
www.crir.org
The Caitlin Raymond International Registry is a comprehensive resource for patients and physicians conducting a search for unrelated bone marrow or cord blood donor.

Cryobanks International
www.cryo-intl.com
Cryobanks International is a leader in the collection, processing and banking of umbilical cord blood stem cells.

DKMS
www.dkmsamericas.org
The DKMS mission is to save lives by recruiting bone marrow donors for leukemia patients. More than 17,000 of our donors have helped save lives by donating their bone marrow. DKMS is the largest and most experienced bone marrow donor center in the world with close to 2 million registered donors.

Gift of Life Bone Marrow Foundation
www.giftoflife.org
The Gift of Life Bone Marrow Foundation is an affiliate registry of the National Marrow Donor Program that specializes in increasing ethnic diversity of the donor pool through recruitment in the Jewish community. The organization was established in 1991 during the highly publicized donor search for Jay Feinberg, who received his transplant in 1995 and now serves as its Executive Director. Today, Gift of Life manages a registry of over 100,000 marrow donors and a growing bank of umbilical cord blood units.

HLA Registry
A Division of Community Blood Services
www.communitybloodservices.org
Community Blood Services is a blood bank that collects blood donations, and offers cord blood banking and bone marrow registration and donations. Founded in 1953, Community Blood Services is a not-for-profit organization devoted to serving the community’s transfusion medicine needs.

New York Blood Center
www.nybloodcenter.org For more than 40 years, New York Blood Center has provided our community with the highest quality transfusion products and services, as well as leading-edge research, technological and medical care innovation, and education in the field of transfusion medicine.

TEPNEL Lifecodes
www.bonemarrowtest.com
BoneMarrowTest.com provides testing resources for patients who need stem cells from bone marrow, peripheral blood cells or umbilical cord blood.


Tools for Patients & Families

CaringBridge
www.caringbridge.com
CaringBridge™ is a nonprofit 501(c)(3) organization offering free personalized Web sites to those wishing to stay in touch with family and friends during significant life events. Our mission is to bring together a global community of care powered by the love of family and friends in an easy, accessible and private way.

MyMedSchedule
www.MyMedSchedule.com
Create your own free printable medication chart to clearly show what times you should take each of your medications or supplements, and how many to take. There are pictures of your pills so they are easy to identify…no mistakes! Create and revise medication lists for yourself, your friends and family members. There is an email and text reminder feature to “take your pills” and a prescription refill reminder too. MyMedSchedule is totally free, secure and private.

Alternative and Complementary Medicine

BC Cancer Agency (Canada)
www.bccancer.bc.ca
The BC Cancer Agency is a part of the Provincial Health Services Authority of Canada.  The Agency provides a province-wide, population-based cancer control program for the residents of British Columbia and the Yukon.  The BC Cancer Agency’s mandate covers the spectrum of cancer care, from prevention and screening, to diagnosis, treatment, and through to rehabilitation. The BC Cancer Agency works to reduce the incidence of cancer, to reduce the mortality rate of people with cancer, and to improve the quality of life of people living with cancer

HerbMed
www.herbmed.org
HerbMed® is an interactive, electronic herbal database that provides hyperlinked access to the scientific data underlying the use of herbs for health. It is information resource provided by the nonprofit Alternative Medicine Foundation, Inc.  The organization provides a free database and a more extensive version available for a paid subscription.

National Center for Complementary and Alternative Medicine
www.nccam.nih.gov
The National Center for Complementary and Alternative Medicine (NCCAM) is 1 of the 27 institutes and centers that make up the National Institutes of Health (NIH).

National Institute of Health Office of Dietary Supplements
http://dietary-supplements.info.nih.gov
The mission of ODS is to strengthen knowledge and understanding of dietary supplements by evaluating scientific information, stimulating and supporting research, disseminating research results, and educating the public to foster an enhanced quality of life and health for the U.S. population.

Office of Cancer Complementary and Alternative Medicine
http://cancer.gov/cam/index.html
The Office of Cancer Complementary and Alternative Medicine (OCCAM) was established in October 1998 to coordinate and enhance the activities of the National Cancer Institute (NCI) in the arena of complementary and alternative medicine (CAM).


Cancer Information and Support

American Cancer Society
www.cancer.org
The American Cancer Society (ACS) is a nationwide, community- based voluntary health organization. Headquartered in Atlanta, Georgia,

CancerCare, Inc.
www.cancercare.org
CancerCare is a national non-profit organization that provides free professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved.

Cancer Information Service
www.cancer.gov
The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

Cancer Support Community
www.cancersupportcommunity.org
In 2009, Gilda’s Club Worldwide and The Wellness Community combined to form the Cancer Support Community. The mission of CSC is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

Cancervive, Inc.
www.cancervive.org
Dedicated to providing support, public education, and advocacy to those who have experienced this disease.  Our mission is to assist survivors to reclaim their lives after cancer.

Coping With Cancer Magazine
www.copingmag.com
Coping® With Cancer is America's consumer magazine for people whose lives have been touched by cancer™. Now in its 19th year of providing knowledge, hope and inspiration, its readers include cancer patients (survivors) and their families, caregivers, healthcare teams and support group leaders.

Cure Magazine
www.curetoday.com
CURE: Cancer Updates‚ Research & Education is a quarterly magazine that combines the science and humanity of cancer for those who have to deal with it on a daily basis. CURE provides scientific information in easy-to-understand language with equally understandable illustrations. It is published by CURE Media Group, LP.

4th Angel Mentoring
www.4thangel.org
The 4th Angel Mentoring Program is a national, free, non-profit organization that looks to enhance the experience of cancer survivorship by reducing stress during diagnosis and treatment. We accomplish this goal by matching patients and caregivers with a trained volunteer who is a cancer survivor or caregiver.

Healthline Cancer Learning Center
www.healthline.com/channel/cancer.html
Healthline Networks offers original health content through HealthExpert Health Forums, as well as physician-reviewed content, health tools and videos from more than 20 leading medical reference publishers and media partners, including A.D.A.M., GALE Cengage Learning, Cerner Multum, NBC Universal, StayWell, Harvard Health Publications, and Reed Elsevier.

Lance Armstrong Foundation/Livestrong
www.livestrong.org
The Lance Armstrong Foundation (LAF) believes that in the battle with cancer, unity is strength, knowledge is power and attitude is everything. Founded in 1997 by cancer survivor and champion cyclist, Lance Armstrong, the LAF provides the practical information and tools people living with cancer need to live strong.

National Coalition for Cancer Survivorship
www.canceradvocacy.org
The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy for systemic changes at the federal level in how the nation researches, regulates, finances and delivers quality cancer care.

Vital Options International
www.vitaloptions.org
Vital Options® International TeleSupport® Cancer Networkis a not-for-profit cancer communications, support and advocacy organization whose mission is to facilitate a global cancer dialogue by using communications technology to reach every person touched by cancer.

Women’s Cancer Resource Center
www.wcrc.org
To empower women with cancer to be active and informed consumers and survivors; to provide community for women with cancer and their supporters; to educate the general community about cancer; and to be actively involved in the struggle for a life-affirming, cancer-free society.


Caregiving Support

Family Caregivers Alliance
www.caregiver.org
FCA is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, servicesresearch and advocacy.

Family Voices
www.familyvoices.org
Family Voices is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs.

Friends’ Health Connection
www.friendshealthconnection.org
Friends' Health Connection is a nonprofit 501(c)(3) organization that connects people who are currently experiencing or who have overcome the same disease, illness, handicap or injury in order to communicate for mutual support.

Lotsa Helping Hands
www.lotsahelpinghands.com
Lotsa Helping Hands is a free World Wide Web service that makes it easy to help loved ones in need.  It's an easy-to-use, private group calendar, specifically designed for organizing helpers, where everyone can pitch in with meals delivery, rides, and other tasks necessary for life to run smoothly during a crisis.  Needs are posted on a personalized web site, where the group calendar is automatically updated, and members sign up to help

National Alliance for Caregiving
www.caregiving.org
Recognizing that family caregivers provide important societal and financial contributions toward maintaining the well-being of those they care for, the Alliance's mission is to be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients.

National Family Caregivers Association
www.thefamilycaregiver.org
The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers.

National Respite Locator Service
www.respitelocator.org
The Chapel Hill Training-Outreach Project, Inc. (CHTOP) is a national provider of training and technical assistance services, and audiovisual and print materials, as well as a provider of direct services to families and children such as Head Start.

Rosalynn Carter Institute
www.rosalynncarter.org
Through research, education, and training, the RCI promotes the mental health and well-being of individuals, families, and professional caregivers; promulgates effective caregiving practices; builds public awareness of caregiving needs; and advances public and social policies that enhance caring communities.

Strength for Caring
www.strengthforcaring.com
Strength for Caring is an online resource and community for family caregivers. Strength for Caring helps family caregivers take care of their loved ones and themselves. Strength for Caring is part of The Caregiver Initiative, created by Johnson & Johnson Consumer Products Company, Division of Johnson & Johnson Consumer Companies, Inc.

Today’s Caregiver Magazine
www.caregiver.com
Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers.

Well Spouse Foundation
www.wellspouse.org
Well Spouse is a national, not for profit membership organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled.


Children’s Programs and Services

2bMe
www.2bme.org
2bMe.org serves as an online component of Look Good…Feel Better® for Teens, a free public service program for adolescents 13 to 17 that provides information dealing with the appearance and sociological side-effects related to cancer and its treatment.

American Childhood Cancer Organization
(formerly Candlelighters Childhood Cancer Foundation)
www.candlelighters.org
American Childhood Cancer Organization's mission is to address the needs of families through programs that emphasize information, advocacy, awareness, and research. Founded in 1970, ACCO is one of the largest grassroots, national organizations dedicated to improving the lives of children and adolescents with cancer and their families.

Children With Leukemia c/o
The Jennifer Lynn Stroud Foundation
www.jlsfoundation.org
Children With Leukemia is a product of the Jennifer Lynn Stroud Foundation. It is produced by the family and friends of Jennifer Stroud. It contains useful information, references, practical suggestions, and references to information that were useful to the Stroud family in Jennifer's 26 month battle with acute myeloid leukemia.

Children’s Leukemia Foundation of Michigan
(Michigan Residents)
www.leukemiamichigan.org
The mission of Children's Leukemia Foundation of Michigan is to provide and promote compassionate, personalized support to people in Michigan affected by leukemia and other related disorders.

Children’s Leukemia Research Association, Inc.
www.childrensleukemia.org
The Children’s Leukemia Research Association, Inc., also known as the National Leukemia Research Association, was founded in 1965 as a not-for-profit organization dedicated to raising funds to support research efforts towards finding the causes and cure for Leukemia.

Children’s Organ Transplant Association (COTA)
www.cota.org
The Children's Organ Transplant Association provides fundraising assistance for children and young adults needing life-saving transplants and promotes organ, marrow and tissue donation.

Group Loop-Online Support for Teens with Cancer
www.grouploop.org
Group Loop is a safe place for teens with cancer and their parents to build an online community to find support, education and hope when dealing with a cancer diagnosis.

Kids Cancer Network
www.kidscancernetwork.org
In 1992, young cancer survivor Kenon Neal founded Kids Cancer Network to provide "a dose of hopeTM" for kids and their families isolated by the rigors of childhood cancer treatment.

Kids Konnected
www.kidskonnected.org
The original Kids Konnected was formed in 1993 as Komen Kids by then ll year old Jon Wagner-Holtz after his mother was treated for breast cancer. At that time there were no programs where Jon could talk to other kids that knew what it was like to have a sick parent. So Jon decided to change things by starting his own hotline to help other kids going through similar situations. And that's how Kids Konnected got started!

CureSearch
http://www.curesearch.org/
CureSearch unites the world's largest childhood cancer research organization, the Children's Oncology Group, and the National Childhood Cancer Foundation through our shared mission to cure childhood cancer. Research is the key to a cure.

National Children’s Cancer Society
http://nationalchildrenscancersociety.com
The mission of The National Children's Cancer Society is to improve the quality of life for children with cancer by promoting children's health through financial and in-kind assistance, advocacy, support services, and education.

Starbright Foundation
www.starbright.org
The STARBRIGHT Foundation is dedicated to the development of projects that empower seriously ill children to combat the medical and emotional challenges they face on a daily basis. STARBRIGHT projects do more than educate or entertain: they address the core issues that accompany illness – the pain, fear, loneliness, and depression that can be as damaging as the sickness itself.

SuperSibs!
www.supersibs.org
As SuperSibs! goes nationwide, our goal is to reach out to brothers and sisters of over 10,000 children who are diagnosed with cancer each year. Through our work, these siblings will feel valued, validated, heard, supported and delighted as recipients of SuperSibs! services and as participants in SuperSibs! activities.


Clinical Trial Information

BMT Support Online
www.bmtsupport.org
BMT Support Online was founded in June 1995 by Kendra Marsh, a bone marrow transplant recipient. Feeling the isolation of not having a BMT support group close to home to provide emotional support, Kendra began searching the internet for others in similar circumstances. In one month's time, the response from others in search of the same type of support was overwhelming.

Cancer Hope Network
www.cancerhopenetwork.org
Cancer Hope Network is a not-for-profit organization that provides free and confidential one-on-one support to cancer patients and their families.  We provide that support by matching cancer patients and/or family members with trained volunteers who have themselves undergone and recovered from a similar cancer experience. 

Center Watch Clinical Trials Listing Service
www.centerwatch.com
CenterWatch is a Boston-based publishing and information services company and a business of The Thomson Corporation. We provide information services used by patients, pharmaceutical, biotechnology and medical device companies, CROs and research centers involved in clinical research around the world.

Coalition of National Cancer Cooperative Groups, Inc.
www.cancertrialshelp.org
The Coalition of Cancer Cooperative Groups, Inc. is the nation's premier network of cancer clinical trials specialists. Our members include cooperative groups, cancer centers, academic medical centers, community hospitals, physician practices, and patient advocate groups. Together, they represent the interests of more than 17,000 cancer investigators, hundreds of patient advocates, and thousands of patients worldwide.

Coping:  Association of Cancer Online Resources Listserv
http://listserv.acor.org
The ACOR Mailing List Center currently offers more than 130 public online information and support mailing lists providing a unique group of empowering communities to more than 75,000 patients, caregivers or anyone looking for answers about cancer and related disorders.

National Cancer Institute
www.cancer.gov/clinical_trials/
NCI has an important role to play in the drug development process in the United States. From its expansive clinical trials program to the drug discovery research it performs and funds, the institute believes it has an essential duty to expedite the discovery and development of interventions that will save lives.

National Institute of Health
www.clinicaltrials.gov
ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals.

Planet Cancer
www.planetcancer.org
Welcome to Planet Cancer. No, we didn't choose to come here either. But, just like you, we ended up as honorary natives of this terrible and wonderful world. Like other planets, Planet Cancer rotates regularly between the dark side of night and the brightness of day. All too often, we lose ourselves on the dark side, forgetting that where there is night, day must follow; and where there is life, there is the light of hope and laughter. Although we acknowledge and accept the night, we want to remind you of the lightness of day by recording on these pages the often entertaining, frequently bizarre and occasionally informative experiences and thoughts of your fellow natives on Planet Cancer. —Robin Blue, Paul Cox and Heidi Schultz Adams (Dallas, Texas, 1995)


Fertility

American Association of Tissue Banks
www.aatb.org
The American Association of Tissue Banks (AATB) is a scientific, not-for-profit, peer group organization founded in 1976 to facilitate the provision of transplantable cells and tissues of uniform high quality in quantities sufficient to meet national needs.

American Society for Reproductive Medicine
www.asrm.org
The Vision of the American Society for Reproductive Medicine (ASRM) is to be  the nationally and internationally recognized leader for multidisciplinary information, education, advocacy and standards in the field of reproductive medicine.

Fertile Hope
www.fertilehope.org
Founded in October 2001, Fertile Hope is a national nonprofit organization dedicated to providing reproductive information, support and hope to cancer patients whose medical treatments present the risk of infertility.

Genetics and IVF Institute
www.givf.com
The Genetics & IVF Institute is the world's largest, fully integrated, specialized provider of infertility treatment and genetic services, and is widely respected for its excellence, innovation, integrity, and total commitment to each and every patient.

Resolve: The National Infertility Association
www.resolve.org
We are a dynamic, 31-year-old organization dedicated to providing you the education, advocacy, and support you need to face the disease of infertility.


Financial Assistance, Fundraising & Insurance

America’s Health Insurance Plans
www.ahip.org
AHIP is the national association representing nearly 1,300 member companies providing health insurance coverage to more than 200 million Americans. 

Be The Match®
www.BeTheMatch.org
Be The Match has a team dedicated to supporting patients, caregivers and families before, during and after transplant. We offer you confidential one-on-one support, financial guidance and free educational resources – DVDs, booklets, online tools and more. Our goal is to get you what you need, when you need it. We can help you learn more about transplant as a treatment option, plan for transplant, and learn what to expect after transplant.

CancerCare Co-Payment Assistance Foundation
www.cancercarecopay.org/
The CancerCare Co-Payment Assistance Foundation is a not-for-profit organization established in 2007 to address the needs of individuals who cannot afford their insurance co-payments to cover the cost of medications for treating cancer.

Cancer Legal Resource Center
www.lls.edu/academics/candp/clrc.html
The Cancer Legal Resource Center provides information and educational outreach on cancer-related legal issues to people with cancer and other impacted by the disease.

Children’s Organ Transplant Association (COTA)
www.cota.org
The Children's Organ Transplant Association (COTA) exists to assist patients who require a life-saving organ, bone marrow, cord blood or stem cell transplant.  We work with any patient who needs a transplant due to a genetic disease such as Cystic Fibrosis, and all patients 21 and younger for any disease or complication.

Dean Randazzo Cancer Foundation
www.deanrandazzocancerfoundation.org
The foundation's purpose is to raise money for cancer research and awareness and assist individuals battling cancer both financially and emotionally.  To date, they have donated over $100,000.00 to worthy beneficiaries who fit these criteria.

HelpHOPELive (Formerly National Transplant Assistance Fund)
www.HelpHOPELive.org
NTAF has over 20 years experience empowering you to raise money in your communities to cover uninsured medical expenses related to transplantation and catastrophic injury.

Medicare Rights Center
www.medicarerights.org
Medicare Rights Center (MRC) is the largest independent source of health care information and assistance in the United States for people with Medicare. Founded in 1989, MRC helps older adults and people with disabilities get good, affordable health care.

My Friends Care Bone Marrow Transplant Fund
(Michigan Residents)
www.myfriendscare.org
My Friends Care Bone Marrow Transplant Fund was formally incorporated as a 501(c)3 organization in 1989. We were started by a woman in Rochester Hills, Michigan, who had a son in need of a transplant and another family with a loved one who needed a transplant. Since then, we've helped hundreds of families throughout Michigan and have really grown in the past few years due to the changing nature of bone marrow transplants as a treatment for many types of cancers and other blood disorders.

National Association of Hospital Hospitality Houses
www.nahhh.org
The National Association of Hospital Hospitality Houses, Inc. is a non-profit corporation serving facilities that provide lodging and other supportive services to patients and their families when confronted with medical emergencies. Each facility assures that a homelike environment is provided to persons who must travel to be with a patient or to receive necessary outpatient care.

National Foundation for Transplants
www.transplants.org
NFT provides financial assistance to transplant candidates and recipients when they face major transplant-related costs not covered by insurance. NFT provides assistance based on a patient’s financial need and on the availability of funds. Funds come from NFT campaigns conducted by local volunteers in honor of a patient in their community. NFT also advocates on behalf of patients in negotiating bills.

Needy Meds
www.needymeds.com
Provides current information on drug assistance programs including requirements and applications forms; discount drug cards; and disease-based assistance programs.

Nielson Organ Transplant Foundation
(Northeast Florida Residents)
www.notf.org
The Nielsen Organ Transplant Foundation was founded in 1982 when a young Jacksonville, FL woman needed a heart transplant.  Many people came together to raise money for Cheryl Nielsen's Heart Fund.  Sadly, Cheryl passed away before she could be transplanted and the Nielsen Organ Transplant Foundation was developed to improve the quality of life of all transplant patients in the Northeast Florida area.

Patient Advocate Foundation
www.patientadvocate.org
Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.

Patient Services Incorporated (PSI)
www.uneedpsi.org 
Assists patients with certain chronic illnesses (e.g., CML, CTCL) and their families with health insurance premiums and medicine co-payments based on the severity of their medical and financial need.

Pharmaceutical Research and Manufacturers of America
www.pparx.org
The Partnership for Prescription Assistance brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them.

Ticket to Work
www.yourtickettowork.com
The Ticket to Work and Self-Sufficiency Program is an employment program for people with disabilities who are interested in going to work.

Together Rx Access Card
www.together-rxaccess.com
Helps those without prescription drug coverage save on brand-name prescription drugs, other prescription products, and a wide range of generic drugs. Certain criteria must be met in order to receive savings.


Foreign Language

ACS: Informacion de referencia sobre el cancer
www.cancer.org/docroot/esp/esp_0.asp
Aprenda sobre los distintos tipos de cáncer, los factores de riesgo, la prevención, el tratamiento y más. Haga clic en “Sign In” que se encuentra en la esquina superior derecha de la pantalla para suscribirse a la página. Después seleccione “Spanish” como idioma preferido, para obtener fácil acceso a los documentos en español. Los formularios de suscripción están en inglés.

Cancer.gov-Algunos documentos especificos estan en espanol
www.cancer.gov/espanol

Espanol-healthfinder
http://healthfinder.gov/espanol
healthfinder® español contiene fuentes de información seleccionadas en español que le pueden servir de guía para tomar decisiones con relación a su salud.  Para comenzar su búsqueda, ingrese en el cuadro de búsqueda anterior el texto que desea investigar o escoja uno de los tema listados a continuación.

Institutos Nacionales de la Salud
http://salud.nih.gov
MedlinePlus Información de salud para usted.


Disease-Related Information

Amyloidosis

Amyloidosis Support Network
www.amyloidosis.org
The Amyloidosis Support Network is committed to improving the survivability and quality of life of patients. We do so by linking those affected by amyloidosis to experienced medical and emotional support resources and promoting awareness among the public and professionals so that the disease can be recognized earlier and appropriately treated.

Anemia

Aplastic Anemia & Myelodysplatic Syndrome (MDS) International Foundation, Inc.
www.aplastic.org
The Aplastic Anemia & MDS International Foundation is the oldest and largest patient advocate and support organization for bone marrow diseases, providing life-saving hope, knowledge, and support to hundreds of thousands of patients and their families around the world. 

Fanconi Anemia Research Fund, Inc.
www.fanconi.org
Our Mission:  To find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide.

Brain Tumor

American Brain Tumor Association
www.abta.org

National Brain Tumor Foundation
www.braintumor.org
The American Brain Tumor Association is a not-for-profit, independent organization. Not affiliated with any one institution, we serve individuals globally and award funds to researchers throughout the United States and Canada.

Breast Cancer

Adelphi New York Statewide Breast
Cancer Hotline and Support Program
www.adelphi.edu/nysbreastcancer
Founded in 1980 First program in New York State exclusively addressing the psychosocial issues associated with breast cancer.

Breast Cancer Network of Strength
www.networkofstrength.org
The mission of Breast Cancer Network of Strength is to ensure, through information, empowerment and peer support, that no one faces breast cancer alone.

The Susan G. Komen Breast Cancer Foundation
www.komen.org
For more than 20 years, the Susan G. Komen Breast Cancer Foundation has been a global leader in the fight against breast cancer through its support of innovative research and community-based outreach programs.

Women’s Cancer Network
www.wcn.org
The mission of the Women's Cancer Network is to keep women informed and to enable them to be their own health advocates. The Gynecologic Cancer Foundation (GCF) and CancerSource have developed the Women's Cancer Network with an unrestricted educational grant provided by Bristol-Myers Squibb Oncology.

Immune Deficiency Disorders

Immune Deficiency Foundation
www.primaryimmune.org
The Immune Deficiency Foundation (IDF) is the national non-profit health organization dedicated to improving the diagnosis and treatment of primary immune deficiency diseases through research and education.

Leukemia & Lymphoma

The Leukemia & Lymphoma Society
www.lls.org
The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. Since its founding in 1949, the Society has invested more than $424 million for research specifically targeting blood cancers.

Leukemia Research Foundation
(Illinois Residents or those within
a 100-mile Radius of Chicago)
www.leukemia-research.org

Lymphoma Research Foundation
www.lymphoma.org
Our Mission: To conquer leukemia, lymphoma, and myelodysplastic syndromes by funding research into their causes and cures, and to enrich the quality of life of those touched by these diseases.

Patients Against Lymphoma
www.lymphomation.org
Providing support and evidence-based resources, independent of health industry funding.

Multiple Myeloma

International Myeloma Foundation
www.myeloma.org
The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure.

Multiple Myeloma Research Foundation
www.multiplemyeloma.org
The Multiple Myeloma Research Foundation (MMRF) was founded in 1998 by twin sisters Karen Andrews and Kathy Giusti following Kathy's diagnosis with multiple myeloma. Today, the MMRF is the world's number one private funder of myeloma specific research.

Myeloproliferative neoplasm

MyMPNConnect
my.mpnconnect.org
This Web site has information to help people living with a myeloproliferative neoplasm (MPN), their family, caregivers, friends and other members of the community. Sometimes a myeloproliferative neoplasm is also called a "blood cancer," "bone marrow cancer" or "bone marrow disorder," because blood cells are made in your bone marrow.

Ovarian Cancer

National Ovarian Cancer Coalition
www.ovarian.org
The National Ovarian Cancer Coalition's mission is to raise awareness about ovarian cancer and to promote education about this disease. By dispelling myths and misunderstandings, the Coalition is committed to improving the overall survival rate and quality of life for women with ovarian cancer.

Women’s Cancer Network
www.wcn.org
The mission of the Gynecologic Cancer Foundation (GCF) is to ensure public awareness of gynecologic cancer prevention, early diagnosis and proper treatment as well as supports research and training related to gynecologic cancers. GCF advances this mission by increasing public and private funds that aid in the development and implementation of programs to meet these goals.

Waldenstrom’s Macroglobulinemia

International Waldenstrom’s Macroglobulinemia Foundation
www.iwmf.com
The IWMF began in 1994, when Arnold Smokler, a retired pharmacist, was diagnosed with WM. Finding little available information and no organized support groups, he formed the Waldenstrom's Macroglobulinemia Support Group (WMSG). The organization gradually grew, and in 1998 was incorporated in the State of Florida under its new name, International Waldenstrom's Macroglobulinemia Foundation as a non-profit corporation.

Paroxysmal Nocturnal Hemoglobinuria

The PNH Research and Support Foundationwww.pnhfoundation.org
The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for PNH disease and to helping U.S. PNH patients in need with funding (up to $3,000) for disease-related expenses not covered by insurance.

Prostate Cancer

Prostaste Cancer Foundation
www.prostatecancerfoundation.org
Formerly CapCure, the Prostate Cancer Foundation is the world's largest philanthropic source of support for prostate cancer research. The PCF has a single goal: To find better treatments and a cure for recurrent prostate cancer.


General Cancer Information

ACOR-Association of Cancer Online Resources
www.acor.org
ACOR is an Internet-based public charity dedicated to improve the quality of care provided to cancer patients and the quality of life of patients, survivors and their caregivers.

National Cancer Institute
www.cancer.gov
The NCI, established under the National Cancer Act of 1937, is the Federal Government's principal agency for cancer research and training.

OncoLink
www.oncolink.com
OncoLink was founded in 1994 by Penn cancer specialists with a mission to help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge. Recent changes have been made to OncoLink to update the look and feel of our site.

People Living With Cancer
www.plwc.org
The American Society of Clinical Oncology (ASCO) is the world's leading professional organization representing physicians of all oncology subspecialties who care for people with cancer. ASCO's more than 20,000 members from the United States and abroad set the standard for patient care worldwide and lead the fight for more effective cancer treatments, increased funding for clinical and translational research, and, ultimately, cures for the many different types of cancer that strike an estimated 10 million people worldwide each year. 

Survivorship Beyond the Cure
www.beyondthecure.org
Beyond the Cure was created for survivors of childhood cancer. In today's society, the word survivor has many connotations. It conjures up images of everything from the Fox television series of the same name to Lance Armstrong, a cancer survivor, winning his sixth Tour de France. Today, the word survivor also represents over 270,000 adult survivors of childhood cancer.

Cancer and Careers
www.cancerandcareers.org
Two years ago, The Cosmetic Executive Women Board of Directors' came upon a startling realization: Five out of some 40 board members had been diagnosed with cancer. Some told their colleagues at work. Others did not. But all continued to work during or following treatment and came upon similar dilemmas.

National Coalition for Cancer Survivorship
www.canceradvocacy.org
The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors.


Statistics

Center for International Blood and Marrow Transplantation Research
www.cibmtr.org
The Center for International Blood and Marrow Transplant Research (CIBMTR) was created to collaborate with the worldwide scientific community, to advance the fields of hematopoietic cell transplantation (HCT) and cellular therapy research.  The organization facilitates important clinical research to increase survival and enrich the quality of life for thousands of HCT patients. 


Symptom Management

Boston Sight PROSE Provider Network
www.bostonsight.org/PROSE
PROSE, which stands for “prosthetic replacement of the ocular surface ecosystem,” protects and enables vision by replacing or supporting damaged ocular surface system functions.

Cancer Nutrition Network for Texans
www.utmb.edu/nsights/patient_information.htm
The Cancer Nutrition Network for Texans (CNNT) Project is a statewide initiative of the Texas Tech University Health Sciences Center Department of Family Medicine, the CPRIT Council, and community partners who are dedicated to helping meet the nutritional support needs of cancer patients and their principal caregivers.

CancerSymptoms.org
www.cancersymptoms.org
Welcome to the Oncology Nursing Society's CancerSymptoms.org website! This website is designed for patients and caregivers to provide information on learning about and managing each of ten common cancer treatment symptoms: anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal disturbances, neutropenia, pain, peripheral neuropathy, and sexual dysfunction.

ImpotenceSpecialists.Com
www.impotencespecialists.com
Impotence Specialists.com is a free service that provides a listing of specialists and online impotence resources.

Look Good…Feel Better
www.lookgoodfeelbetter.org
LGFB group programs are offered nationwide in hospitals and other community settings. In these sessions, LGFB trained volunteer cosmetologists teach women how to cope with skin changes and hair loss using cosmetics and skin care products donated by the cosmetic industry. Group programs and other services for women are offered in all 50 states and the District of Columbia. (International LGFB programs are also offered by our sister organizations.)

Look Good…Feel Better for Men
www.lookgoodfeelbetterformen.org
A 10 page brochure and Web site that provide information on how to combat appearance-related side effects of cancer treatment to look and feel confident and in control. The brochure features a tear-out guide, The Daily Routine, which reviews basic steps for good skin care and ways to camouflage hair loss. The Look Good…Feel Better for Men brochure is available through the ACS, by calling 800-395-LOOK, as well as through select cancer support centers nationwide.

National Lymphedema Network
www.lymphnet.org
The National Lymphedema Network (NLN) is an internationally recognized non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.

The Neuropathy Association
www.neuropathy.org
Provides support and education, advocates for patients’ interests, and promotes research into the causes of and cures for peripheral neuropathy.


Transportation

Air Care Alliance
www.aircareall.org
The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilots are dedicated to community service. This ACA site will introduce you to us and to all the groups we list whose volunteers perform public benefit flying for health care, patient transport, disaster relief, environmental support, and other missions of public service. 

Angel Flight
http://www.angelflight.com/
Angel Flight was created by a group of pilots who believe in the benefit of volunteering. We will arrange free air transportation for any legitimate, charitable, medically related need. This service is available to individuals, and health care organizations. We will also arrange transportation of those people who are financially distressed, or who are in a time-critical, non-emergency situation due to their medical condition.

Corporate Angel Network
www.corpangelnetwork.org
Corporate Angel Network is the only charitable organization in the USA whose sole mission is to ease the emotional stress, physical discomfort and financial burden of travel for cancer patients by arranging free flights to treatment centers, using the empty seats on corporate aircraft flying on routine business.

National Patient Travel Center
www.patienttravel.org
The NATIONAL PATIENT TRAVEL HELPLINE provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available in the national charitable medical air transportation network.
Our Goal is  "....to ensure that no financially-needy patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of medical air transportation."


Treatment

ChemoCare
www.chemocare.com
Chemocare.com is a program of the Scott Hamilton CARES initiative. Chemo Care is your source for chemotherapy, chemo side effects and chemotherapy drug information.

Lab Tests Online
www.labtestsonline.org
Lab Tests Online has been designed to help you, as a patient or caregiver, to better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases.

Radiology Info
www.radiologyinfo.org
RadiologyInfo is designed to answer your questions related to the many radiologic procedures and therapies available to you and your family. The Web site provides you with information whether you're preparing for a baseline mammogram, learning more about your child's x-ray, or researching radiation oncology (cancer therapy) procedures.


Please contact us if you would like to suggest a Web site not already included among our links.

The information on this site should not be construed as medical advice. Please consult with your physician regarding your medical decisions and treatment. The listed resources are not intended to be endorsements.

Happy 2nd Birthday! We want to recognize survivors on the date of their transplant anniversary
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